2018 Annual Conference – Events

Sunday, July 22

NCIL Board Meeting: 9:00 a.m. – 1:00 p.m.

Pre-Conference Sessions

Integrating Disability Into Emergency Management A Blueprint to Saving Lives in the Community: 2:00 – 3:30 p.m.

Presented by: Christy Dunaway – Chair, NCIL Emergency Preparedness Subcommittee; Todd Holloway; Vance Taylor; June Kailes; and Marcie Roth

2017 was unprecedented in the number and severity of disasters in our country. The disability community was disproportionately impacted because we, and local and state emergency managers and society in general, have not acted upon the lessons we have observed from previous disasters, implementing practices, policies and procedures to better prepare our response. Natural disasters are more intense, human caused disasters more frequent. If people with disabilities are to survive these disasters with less damage to us and our community, we must take action now! To paraphrase Justin Dart, “we must get involved as if our lives depended on it.” The NCIL Emergency Preparedness Subcommittee will discuss promising practices regarding developing strategies to integrate disability into emergency management in your community.

Resistance through Direct Action – How IL and ADAPT Work Together: 4:00 – 5:30 p.m.

Presented by: Bruce Darling – Chair, NCIL Healthcare / PAS Subcommittee; Anita Cameron; Candie Dalton; Dawn Russell; Denise Figueroa; Lindsay Miller; and Mike Oxford

After the #SummerOfADAPT, there has been a renewed interest in organizing direct action throughout the IL Community and this organizing has been critically important. In fact, without the on-the-ground organizing done around the country, we would likely not have saved Obamacare or prevented the proposed draconian Medicaid cuts. The purpose of this pre-conference is to provide participants with an orientation to ADAPT and disability-led direct action while helping participants understand the various ways that CILs can provide support to local ADAPT organizing and how states can leverage this in effecting systems change.

Youth Orientation: 6:00 – 7:00 p.m.

Youth (anyone age 26 and under) are welcome to attend this meeting. We will be discussing the layout of the conference, the function of the youth caucus, and setting goals for the youth caucus in the next year. Youth scholarship recipients are required to attend.

Monday, July 23

Opening Plenary: 9:00 – 10:00 a.m.

Join us for an opening keynote address to kick off a week of movement-building and mobilization through action! Complete details will be available in the Conference Program. Don’t miss this exciting 2018 Annual Conference opener!

Legislative & Advocacy Update: 10:15 – 11:30 a.m.

Get up-to-date information on the progress of NCIL’s advocacy efforts from Chairs of NCIL’s Legislative & Advocacy Subcommittees. The Chairs will review and answer questions about NCIL’s advocacy talking points so participants are fully prepared for their Congressional visits on Tuesday.

Preparing for the Day on the Hill: 11:30 – 11:45 a.m.

Learn the ABCs of NCIL’s March & Rally, including where to meet, what to bring, important information about our route, what to do in case of an emergency, and how to get back to the hotel after your Capitol Hill Visits.

Demo: Do It. Make It. Fix It – Assistive Technology You Control: 1:00 and 3:00 p.m.

Presented by: John Flaherty – Assistive Technology Specialist, TRPIL; Brenda Dare – IL Project Manager, TRPIL

Assistive Technology is essential for independence, but ready-made devices are often expensive, difficult to trial and may not even meet the needs of users. The current climate of DIY and Maker efforts offer a range of options that can be tailored to the individual. Our presentation will speak to the effectiveness of two approaches, one on each end of the tech complexity spectrum: adaptive design work utilizing triple-ply cardboard to create custom answers and a 3D printing program that can generate individualized solutions external to the consumer marketplace. Attend the demo at either 1:00 or 3:00 p.m. to get hands-on assistance with your assistive technology questions! Please note that the 1:00 demo is scheduled concurrently with Concurrent Workshops I.

Regional Caucuses: Regions I through V: 2:45 – 3:45 p.m.; Regions VI through X: 4:15 – 5:15 p.m.

This is your opportunity to strategize for your Capitol Hill Visits. Each state decides who will attend which meeting to ensure that every legislator is visited. Please note the separate times listed for Regions I – V and VI – X. A list of Regions by state is available at www.ncil.org/regions.

Diversity Mixer: 6:00 – 8:00 p.m.

The Diversity Committee will present awards to NCIL members who have committed themselves to centering people of color, LGBTQIA, young people, and other communities underrepresented in IL. Light snacks and non-alcoholic beverages will be available, accompanied by a cash bar.

Tuesday, July 24

March & Rally at the U.S. Capitol: 10:00 a.m. – 12:30 p.m.

This annual tradition is your opportunity to take grassroots advocacy to the streets! Participants will march from the Grand Hyatt to Capitol Hill carrying signs and chanting for disability rights. Then, marchers will converge in front of the Capitol for an empowering rally. Complementary Do-It-Yourself Sign Kits will be provided to Conference registrants who wish to participate.

Capitol Hill Visits: 1:00 – 5:00 p.m.

The key to a successful Hill Visit is planning! It is very important that meetings with legislators are scheduled 4-6 weeks in advance. Contact the legislator’s Appointment Secretary / Scheduler to schedule a meeting for the afternoon of July 24 (after 1:00p.m.). Explain your purpose and who you represent. It will be easier for Congressional staff to arrange a meeting if they know what you wish to discuss. Direct requests for interpreters and other accommodations to Congressional staff.

Wednesday, July 25

Exhibit Fair: 10:15 a.m. – 12:00 p.m.

Spend some time browsing the products and services offered by our exhibitors, many of which are your fellow NCIL members. The NCIL Conference would not be possible without the generous support of our exhibitors and sponsors. Exhibits will be open all day Wednesday and Thursday.

American Health Policy 102: Understanding Medicaid and Recent / Current Policy Changes: 10:30 – 11:45 a.m.

This training workshop will: 1) provide an overview of the evolution and current design of the US Medicaid program, 2) assess the growing role of Medicaid managed care; 3) discuss recent Congressional and Administrative proposals for Medicaid reform; 4) describe the variety of HCBS programs funded by Medicaid; and 5) explore implications of current/recent policy changes for Medicaid beneficiaries with disabilities. Please note that this event is scheduled concurrently with Film Screening: The Sensitives.

Film Screening – The Sensitives: 10:30 a.m. – 12:00 p.m.

The Sensitives is a documentary that premiered at NYC’s Tribeca Film Festival this year. Drew Xanthopoulos filmed the material over a three-year period during which he stayed with (or near to) people with hypersensitivities. This film provides an up-close education about the barriers and adaptations common to people with this disability. Such an education is unlikely to be available elsewhere, and it is crucial to fulfilling our responsibilities as cross-disability advocates and service providers. Please note that this event is scheduled concurrently with American Health Policy 102: Understanding Medicaid and Recent / Current Policy Changes.

Awards Luncheon: 12:00 – 2:00 p.m.

Join us to celebrate and honor this year’s national award winners! Awards will be presented over lunch. Admission to this event is included in full Conference registration.

Annual Council Meeting: 2:30 – 5:30 p.m.

Attend the Annual Council Meeting to vote for Governing Board members and resolutions that will guide NCIL in the coming years. This year, elections will be held for: Vice-President, Secretary, Diversity Chair, and three Members-At-Large. Elections for Youth at-Large and Representatives of Regions II, IV, VI, VIII, and X will be held prior to the Annual Conference and the winners will be announced at the meeting. CILs and SILCs must pay their 2018 dues in full by June 25 (30 days prior) to be eligible to vote in person or by proxy.

Closing Social – NCIL@Nite: 8:00 – 11:00 p.m.

Join us as we celebrate the 2018 Annual Conference on Independent Living. Come ready to join your fellow advocates in merriment and don’t forget your dancing shoes! Light snacks and non-alcoholic beverages will be available free of charge, accompanied by a cash-bar.

Thursday, July 26

Film Screening – Invalid Corps: 1:30 – 2:15 p.m.

Created in 1863, the Invalid Corps was made up of men who had been “disabled by wounds or by disease contracted in the line of duty” – men missing limbs, and eyes, those with rheumatism, epilepsy, bullet injuries, those with what we would now call PTSD, and many others. In this film, it is July 1864 and Confederate General Jubal Early is at the gates of Washington, DC. The city is in panic. Almost every able-bodied soldier from the Union has already been sent south with General Grant for the siege of Petersburg. The only defenders remaining are clerks, government officials, and the Invalid Corps. This is the story of men with disabilities, of men with honor, and of men whose place in history shouldn’t be forgotten. We are proud to tell you of the Invalid Corps and the men who served in it. Please note that this film screening is scheduled concurrently with Concurrent Workshops V.

Legislative Debriefing: 3:00 – 4:00 p.m.

This session will summarize the advocacy accomplished during the week and serve as a springboard for the development of a plan of action that can be implemented at the national, state, and local levels during the coming year.

Closing Plenary: 4:15 – 5:00 p.m.

Invited guests will deliver a closing keynote on pressing advocacy issues important to the NCIL membership and energize the crowd before we return home and prepare to make change.

Friday, July 27

NCIL Board Meeting: 9:00 a.m. – 12:00 p.m.