IL-NET First Biennial Independent Living Institute: A Deep Dive into Consumer Control and Leadership

IL-NET National Training & Technical Assistance Center for Independent Living presents…A Virtual Multi-Day Institute

September 7-9, 2022

Register online or reach out to [email protected] for more information.

The IL-NET National Training & Technical Assistance (T&TA) Center, operated by ILRU in collaboration with NCIL, APRIL, and the University of Montana Rural Institute and RTC: Rural, is proud to announce the first national biennial institute on consumer control and leadership.

Learn how CILs can be successful in encouraging and supporting leaders, staff, and consumers to take on leadership in Centers for Independent Living, in the disability rights movement, and in community, state and national roles. The vital relationship between leadership and consumer control and its impact on CIL operations will be explored. This 2.5-day extended, first-of-its-kind virtual learning experience for CILs will explore the importance of consumer control and how it impacts leadership development and guides community-led efforts.

Registration Fee: This event is free-of-charge.

Target Audience:

Board members, executive directors, assistant directors, program managers, and staff of Centers for Independent Living, and individuals with disabilities. Also welcome are members and staff of Statewide Independent Living Councils (SILCs), leaders of state independent living services (ILS) programs, designated state entities (DSEs), public officials, researchers, and other practitioners.

Learning Objectives:

  • Understand the IL Model and how CILs can address the discriminatory practices and inequities it reveals
  • Describe the essential ways that CILs differ from other nonprofit organizations
  • Explain how CILs can continuously operationalize disability leadership and consumer control
  • Recognize how CILs can become diverse, inclusive, and welcoming to members of previously underserved groups
  • Specify how consumer control informs how an entire CIL is operated


September 7

11:00 a.m. – 12:00 p.m.: How Consumer Control and Diversity, Equity, and Inclusion (DEI) Advance Leadership of People with Disabilities

An overview of the beginnings of the shift from the medical model to the independent living model

  • Richard Petty
  • Dr. Linda Groomes
  • Bill Henning
  • Bonnie O’Day

12:00 – 1:00 p.m. and 3:00 – 4:00 p.m.: Consumer Control – Our Foundation for the Past & Future

An exploration of how the activism of nationwide grassroots consumer groups led to the creation of the national consumer-controlled CIL program — from early CIL leaders who were there.

  • Judy Heumann
  • Darrell Jones
  • Lou Ann Kibbee
  • Paula McElwee

4:00 – 5:00 p.m.: Future of IL – Diversity in CILs and Leadership

One CIL’s experience in networking and creating community-wide engagement that’s diverse, equitable, and inclusive.

  • Marisa Cantu

September 8

11:00 a.m. – 1:00 p.m. and 3:00 – 5:00 p.m.: Developing Leaders through Diverse and Inclusive Consumer-Directed Youth Leadership Opportunities

Examples from the IL network of how leaders can emerge and grow when they are supported and given opportunities from their youth.

  • Aaron Baier
  • Kimberly Tissot
  • Able SC’s Youth Leadership Program (Equip) Participants and Alumnae of SC Youth Leadership Network:
    • Wednesday Jones
    • Alexis Rivers
    • Jack Symonette

September 9

11:00 a.m. – 12:50 p.m.: Leadership Beyond the CIL

An exploration of how a CIL’s inclusive community engagement leads to diverse leaders for that community.

  • Michelle Garcia
  • Wanda Lopez
  • Latricia Seye
  • Ben Santos

12:50 – 1:00 p.m.: Wrap-up and Next Steps

About This Virtual Training:

  • Live sessions will be held 11:00 a.m. – 1:00 p.m. Eastern and 3:00 p.m. – 5:00 p.m. Eastern on September 7 and 8; and 11:00 a.m. – 1:00 p.m. Eastern on September 9.
  • We will also have virtual office hours and practical assignments between sessions.

Presented by the IL-NET: The IL-NET National Training and Technical Assistance (T&TA) Center for Independent Living is operated by ILRU (Independent Living Research Utilization). The IL-NET T&TA Center provides training and technical assistance to centers for independent living and statewide independent living councils. The IL-NET is supported by grant numbers 90ILTA0002 and 90ISTA0002 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.