2015 Board Reports


President’s Report

Prepared by: Lou Ann Kibbee, President

Description of Committee: The Executive Committee of NCIL shall be composed of the President, Vice President, Secretary, Treasurer, the Chair of the Regional Representatives, the Chair of the Diversity Committee, and the Executive Director. The Executive Committee may take action on behalf of the Governing Board between Governing Board meetings. Actions taken by the Executive Committee shall be consistent with the mission of the organization, the direction of the organization as prescribed by the goals of the organization, and within the Governing Board’s approved annual organizational budget. The Executive Committee shall evaluate the performance of the Executive Director. The annual evaluation shall be conducted in January of each year.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Ongoing communication with Executive Director Kelly Buckland and Vice President Mark Derry
  • Assisted in organizing and participating in a call between advocates and NCIL Leadership and PAS Sub Chair to work on activities surrounding the DOL Rules.
  • Presented at the 2014 “Home for the Holidays” event for SKIL Resource Center in Parsons, KS
  • Worked with Executive Committee on Executive Directors Performance Evaluation.
  • Presented at the Massachusetts IL Conference Sept. 16-17 on WIOA.
  • Worked on the Strategic Plan with the Executive Committee and all the Chairs of Lead Groups to meet Goals
  • Work with Vice President on issues with Subcommittees and Task Forces
  • Continue working with Vice President and Executive Director on advocacy alerts and sign-ons with other organizations.
  • Participated in workgroup that reviewed and selected awardees for Craig Nielsen Foundation grants
  • Had a conversation with Aaron Bishop to alert us about the move to the temporary home and Interim Director for ILA
  • Worked with the Secretary on items for the HR Committee to review
  • Participated in meeting with Jamie Kendall and Vicki Gottlich, ACL in conjunction with the February Board meeting
  • Presented at and participated in the NCIL Congressional Briefing in February.
  • Participated in call with Corinna Stiles, ACL.


  • Appointed Roger Frischenmeyer as the new Chair of the Annual Conference Subcommittee
  • Appointed Janet Wilkinson as the Co-Chair of the Housing Subcommittee
  • Appointed new WIOA Task Force members and Co-Chairs Shannon Jones and Vicki Haws
  • Established MIS/Data Collection Work Group, appointing members including Chair Anne-Marie Hughey.
  • Received resignation from Dara Baldwin, Co-Chair of the ADA/Civil Rights Subcommittee effective July 31st.


  • Chaired Board meeting post conference, welcoming new Board members.
  • Chaired Board meetings in September 2014 (Seattle) and February 2015 (DC)
  • Chaired Executive Committee meetings
  • Participated on Rehab Act Subcommittee calls
  • Participated in various Legislative & Advocacy Subcommittee calls
  • Participated in some Legislative & Advocacy Committee calls
  • Participated in Annual Conference Subcommittee calls
  • Participated in some Region Rep Calls
  • Participated in WIOA Task Force calls and ILA Subgroup to provide recommendations to ACL for WIOA regulations.
  • Participated on Finance Committee calls
  • Participated on Resource Development Subcommittee calls
  • Participated in Corporate Development Council calls
  • Presented to the Executive Committee that Paula McElwee, At-Large Member submitted her resignation due to her new position with ILRU
  • Accepted resignation of Vicki Haws, Co-Chair of the Rehab Subcommittee and appointed Diana Garrett in the position

Summary of progress on Strategic Plan responsibilities (if applicable):

  1. Continuing work with Executive Committee on the Goals we are the Lead responsible group on. We have prioritized the goals and making progress on the ones we have established as the most important to move forward in first.
  2. Have been working with Lead Responsible Group Chairs to work on goals they are responsible for. Some of these Chairs and Staff are very busy with the conference. I will follow up with them all after the conference.

Matters requiring action by the Board/Members: Make recommendations to the membership on Resolutions presented to NCIL.

Committee goals and objectives for the next year: As Board Chair, my goal is to continue to work with the rest of the NCIL Board and membership to maintain NCIL’s position as the “Go To” organization on Independent Living and Disability Issues in DC. We will continue our work to implement the 2014-2016 Strategic Plan. Our top priority will be working with ACL to assure the regulations and guidance are clearly following the written law and Congressional intent of WIOA!

Other: Happy 25th Anniversary Americans with Disabilities Act!!! Congratulations to everyone who fought to get us to this point where we have seen much success! And congratulations to everyone continuing the fight because there is still much work to be done!

Thank you for all the great work done by Kelly and the NCIL staff and interns! I am proud of all the work being done but especially proud of our continued work in bringing more youth into the movement and leadership through increased participation in this year’s NCIL Conference. We have some amazing Chairs of Committees, Subcommittees, and Task Forces along with the members doing some great work! I also want to thank all the NCIL Board members and their sponsoring organizations for supporting the best national disability rights organization there is!

One of the best ideas since I have been on the NCIL Board (16 years) that is in our current Strategic Plan, the Corporate Development Council has been meeting regularly. I am so excited about this! It is absolutely refreshing to hear the members get excited and talk about all the great things that NCIL has to offer Corporations. We have always known it to be true but to hear them say it is the best!! I want to thank Helena Berger, our Consultant working on the CDC for all the work she is doing to make this Council a reality!!

After having one of our most exciting years last year, we do have some challenges but we will work through those as we always do. We are advocates, and therefore we break down the barriers!

Outcome Measures Task Force Report

Prepared by: Dan Kessler and Pat Puckett, Co-Chairs

Description of Committee: The purpose of the Outcomes Measures Task Force is to provide information to the membership on the NCIL outcome measures for CILs.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014)

  1. Conducted Outcome Measures Webinar
  2. Participated on conference call with ACL regarding 704 Report.
  3. Conducting workshop on 704 Report at Annual Conference.

Matters requiring action by the Board/Members: None

Committee goals and objectives for the next year: Continue to monitor process for new 704 Report, solicit feedback from membership, and advocate for a 704 Report that is more user-friendly, and better reflects the work of the CILs.

Human Resources Committee Report

Prepared by: Ann McDaniel, Chairperson and NCIL Board Secretary

Description of Committee: The function of the Secretary is to serve as the chairperson of the Human Resource Committee and to serve on the Governing Board and the Executive Committee. The Human Resource Committee is responsible for coordinating all membership recruitment, leadership development activities, and identifying and recruiting individuals to serve on the Governing Board as well as overseeing other activities related to human resource issues.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Committee met regularly throughout period
  • SOP Issues:
    • Revised SOP on board member resource development/financial donation responsibility and developed SOP on tracking “gives” and “gets”
    • Clarified process for Executive Director performance evaluation
    • Revised/developed merit increase policy
    • SOP for flat fee for board members to attend board meetings by phone
    • Revised proxy voting policy for Annual Meeting
    • Revised/developed SOP for when and how we represent NCIL in an official capacity
    • Discussed SOP on process for Ad-hoc committees or Task Forces to become standing committees/subcommittees
  • Other Issues:
    • Proxy Statement form revisions
    • Proxy bylaws revision
    • Discussed how we set internal priorities and policy priorities that are not legislative
    • Conducted two surveys of board members
      • Self-assessment of board performance
      • Survey of board member skills and interests
    • Reviewed board terms and vacancies for elections
      • Brainstormed potential board members
      • Used survey results in board recruitment process
      • Focus on youth recruitment
    • Reviewed and revised NCIL Guiding Principles particularly regarding inclusion/nondiscrimination of LGBTQ
    • Reviewed and revised Annual Meeting process
      • Recommendations:
        • walk through the process at the beginning of the meeting,
        • walk through the agenda at the beginning of the meeting,
        • explain the duties of the folks at the front of the room – Including the Parliamentarian
    • Discussed Mentoring for board members
    • Discussed how and when to recognize out-going board members
      • Recommendation – a card signed by all board members and a letter from the President of the board
    • Committee on committees – this was put on hold until WIOA regulations and standards & indicators are done
  • Reviewed Membership Subcommittee issues including:
    • Consistent recruiting message
    • Member benefits
    • “Approval” of new member applications process

Summary of progress on Strategic Plan responsibilities (if applicable): None

Matters requiring action by the Board/Members:

  • Approval of SOP on merit increases
  • Approval of SOP on representing NCIL
  • Approval of SOP on tracking “gives” and “gets”

Committee goals and objectives for the next year:

  • Continue to refine board recruitment process
  • Continue outreach to youth for:
    • NCIL membership
    • Running for Board positions
  • Continue to examine potential mentoring processes for board members

Other: On behalf of the committee and myself, I would like to express great appreciation for the staff support we receive from Tim Fuchs, NCIL Operations Director. The work and productiveness of this committee would not be possible without Tim’s support!

Annual Conference Subcommittee Report

Prepared by: Roger Frischenmeyer, Chairperson

Description of Committee: The charge of the Annual conference subcommittee is to develop and implement a conference program that, to the greatest extent possible, meets the educational and experiential needs of centers for independent living, statewide independent living councils, and people with disabilities.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Reviewed feedback from Annual conference
  • Conducted monthly meetings
  • Began to plan this year’s annual conference
  • Gave input to the committee who is planning the ADA celebration

Summary of progress on Strategic Plan responsibilities (if applicable): None at this time.

Matters requiring action by the Board/Members: None at this time.

Committee goals and objectives for the next year:

  • Review 2015 conference evaluation results
  • Establish theme for 2016 conference by October
  • Distribute RFP for conference workshops by Mid-November
  • Use conference to expand youth involvement in NCIL
  • Maximize training opportunities applicable to all NCIL members and targeted future members at the Annual Conference

Regional Representatives Committee Report

Prepared by: Maureen Ryan, Chair of the Region Reps

Description of Committee: The purpose of the Regional Representative Committee is to promote communication with NCIL membership

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

Once again in 2015, we were fortunate as all 10 Regions had active Regional Representatives! This is our 3rd year in a row and we are very fortunate to have this great group of regional leaders. New Region Reps this year included Pat Puckett – Region IV, Diana Garrett – Region VI, Roger Frischenmeyer – Region VII. All odd regions are up for election in July 2015 and all current RRs are running again.

We continue to focus on all of the responsibilities of a Region Rep within our Committee; including the RR Responsibilities for annual conference events, the role of state coordinators, implementing the revised Regional Advocacy Award process, and annual elections(or re-elections) of Region Reps.

The RRs also put a great deal of energy into increasing NCIL’s membership. This included outreaching by personal phone calls, emails, and one on one contacts with people in their region. We also just began implementing a new process for targeting 1 CIL per month in each region that used to be a member of NCIL, but did not renew their membership. Hopefully this will lead to an increase in the number of CILs.

One of the issues that came out while outreaching to non-members in the regions was the lack of IL funding. Therefore, the RRs developed a survey that was sent to each state that asked them to tell us what (if any) their issues were with IL funding. So far we have received responses from about 65% of the states – see below. The top issues with IL funding are; #1 – CILS starting with too low of base funding, #2 no more ARRA funds, and #3 non-statewide funding. NCIL will use this info while working with our new ILA to address funding concerns.

Question: Percent

  • No More ARRA funds: 45.95%
  • Changes due to ARRA funds: 18.92%
  • Disproportionate service areas: 35.14%
  • Many areas of the state do not have IL Funding/CILS: 40.54%
  • CILS started with too low of base funding: 48.65%
  • Other: State Funding cuts: 32.43%
  • Other: Lost $$ to other entities (DSU, VR, etc.): 5.41%
  • Other: funding formulas changed with conflicting/no explanation: 16.22%

The RRs received many questions from our IL community regarding the WIOA and the ILA and stayed on top of the information by working closely with the NCIL Rehab Committee. We thank the excellent communication from the NCIL Rehab Committee and our ED, Kelly Buckland for keeping us so well informed.

Summary of progress on Strategic Plan responsibilities (if applicable): Although the RR Committee is not the lead on any of the Plan’s goals, we are working with other committees on 3 goals; Increase Membership, Build effective action alert response system, and Provide training and technical assistance.

Matters requiring action by the Board/Members: None at this time

Committee goals and objectives for the next year:

  • All Regions have active Region Reps.
  • All Regions have active contacts in each state.
  • Complete the activities for the 3 goals within the Strategic Plan – see above.

Diversity Committee Report

Prepared by: Stanley Holbrook, Chair

Description: The Diversity Committee exists to advise NCIL on ways in which to increase the participation of individuals with disabilities from diverse populations throughout the organization and its activities.

Summary of Activities Conducted Since the last Governing Board Meeting:

The Committee will continue to address the following:

  • Ensure the diversity is woven into every aspect of infrastructure within NCIL
  • Conducted monthly conference call (many were bi-monthly calls)
  • Developed a survey to begin to collect baseline information to determine the number of diverse staff working for CIL’s and those in decision-making positions. That survey is being reformatted and it will be sent to the NCIL Board as well as the membership once the baseline information has been collected and summarized, strategies will be developed to increase diversity at Centers and SILCs. One immediate strategy is to garner more participation and
  • use of the Cultural and Linguistic Competency Assessment tool for Disability organization that NCIL worked on in conjunction with TASH NCCC and several other organizations that serve people with disabilities
  • The Diversity committee developed a statement concerning the event in Ferguson MO and other similar events. We have developed a panel forum that will be held at the NCIL conference this year to begin the dialogue to begin curb police brutality of people with color and people with physical and intellectual disabilities.
  • The Youth Caucus has reorganized and are active
  • The LGBTQ caucus had talked about reorganizing, but I am unsure if that has happened as of yet
  • We went through the Diversity Award process this year and have chosen a winner

Matters Requiring Action by the Governing Board: Please complete the Diversity committee baseline survey once you receive it

Committee Goals and Objectives until the next Governing Board Meeting:

  • To continue to develop and implement strategic plan/ diversity initiatives for NCIL’s Strategic plan. Hopefully we are beyond gathering of baseline information and moving into strategy development
  • Increase Diversity committee participation/leadership. Look to groom a new leader for the committee
  • Re activate LGBTQ Caucus (if not activated)
  • Complete our annual action plan
  • Highlight different cultures and lifestyles of People with disabilities in the Wham.
  • Develop a good relationship with Civil Rights and/or Social Justice organization to assist us in advocacy efforts (now and the future)
  • Continue monthly/bi-monthly calls

Women’s Caucus Report

Prepared by: Mary Margaret Moore and Sarah Launderville, Co-Chairs

Description of Committee: The NCIL Women’s Caucus is open to all NCIL members who self-identify as women seeking support to erase the barriers to independent living in their lives and their sisters’ lives.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

At the 2014 Annual Meeting the Caucus filmed women who attended the conference asking them what they believe needs to happen in order for women with disabilities to be successful and what barriers they fight up against. Women and male activists from across the nation were generous with their time and told their stories. We heard about inequity and issues of housing, transportation, personal attendant services, parenting, gender and sexuality.

Over the year, the hours of video was edited to clips that will be shown at the 2015 NCIL conference. We appreciate everyone who participated in the project.

The caucus did not meet every month this year, but we had excellent ongoing conversations with members on issues related to women.

We worked with others a presentation proposal on parenting and disability and although the proposal was not accepted, we will continue this conversation at upcoming meetings.

We choose award winners and will be presenting Women’s Caucus Hall of Fame award at the 2015 NCIL conference during the Diversity Mixer honoring national leaders of our movement.

Summary of progress on Strategic Plan responsibilities (if applicable): N/A

Matters requiring action by the Board/Members: None at this time.

Committee goals and objectives for the next year:

  • Present 2015 NCIL Women Hall of Fame Award winners
  • Show video clips at conference
  • Hold a joint meeting at conference between women and youth caucus
  • Continue to engage members
  • Recruit new members
  • Put together learning opportunities
  • Focus on the mentoring and leadership opportunities for women within NCIL

Other: The women’s caucus wants to extend a thank you to all of the individual advocates who promote independent living daily. We know that so many take the time to bring the issues forward to combat prejudice, discrimination and oppression.

We also want to thank the Diversity Chair Stan Holbrook for his ongoing leadership and support of the NCIL Women’s Caucus.

Finance Committee Report

Prepared by: Roger Howard, Treasurer

Description of Committee: The Finance Committee guides and monitors the finances and accounting systems of NCIL to ensure accurate financial reporting, proper accounting practices, and financial solvency.

Summary of activities conducted since the 2014 Annual MeetingLsince July 30, 2014)

The Finance Committee has met on a regular basis to review and approve the financial statements (including the balance sheet, income and expense statement, cash flow, annual budget, and annual conference budget) and other financial issues related to NCIL.

The accounting software, which changed from MAS90 to QuickBooks in early 2014, is now giving a much more accurate and transparent account of the financial documents. Those financial documents, such as the Income and Expense report, Balance Sheet, etc. now reflect a much more accurate picture of NCIL’s financial position and have been revised this year to make them even easier to review

2014 Audit Update

Ahmad and Associates conducted the annual independent financial audit in early 2015. The audit was extremely thorough, and showed that NCIL ended the year in the black…

A modified annual budget for 2015 was submitted by staff to the Financial Committee in early September, and the committee recommended that the Executive Committee approve that budget. The Executive Committee approved the modified budget, and that in turn was accepted by the full Board at the winter 2015 meeting.

Summary of progress on Strategic Plan responsibilities (if applicable):

Goal Category: Political Power

Goal 1: Hire Director of Public Policy

Measure of Success: Director of Public Policy is hired.

Responsible Group: Finance Committee/Executive Committee/Executive Director

In the absence of funds for a Director of Public Policy, a Public Policy staff position was funded by the 2015 budget, in the hopes the position can be upgraded in the future

Matters requiring action by the Board/Members:

Review and consideration of the most recent financial statements: review the 2015 operating budget.

Committee goals and objectives for the next year:

The goal of the finance committee will be to continue to guide and monitor the finances and accounting systems to make reporting an easier, and more understandable and achievable process, and to ensure the financial solvency of NCIL.

Resource Development Subcommittee Report

Prepared by: Phil Pangrazio, Chair

Summary of Activities Conducted Since the last Governing Board Meeting: The Resource Development Subcommittee has met several times this spring and early summer. NCIL is continuing to contract with Helena Berger to perform development activities related to the Annual Conference sponsorships, however, Helena has accepted the position of Acting Executive Director of AAPD. She has worked diligently on sponsors for the 2015 conference and is reaching out to several new and previous corporate prospects including Comcast, Verizon, Amgen, Google, Mitsubishi, Amtrak, and many others. As of May, approximately $131,000 was secured for conference sponsorships. As of March, membership revenue was in excess of $214,000. NCIL registered for the AmazonSmile as a fundraising tool.

Kelly, Helena and some NCIL Board members have been meeting with NCIL’s new Corporate Development Council (CDC). Hopefully, this CDC can cultivate more corporate interest and support for NCIL.

The Corporate Development Council is working on the following responsibilities:

  • Provide direction and technical assistance to NCIL on how to develop resources and corporate relationships
  • Provide corporate connections
  • Increase awareness of NCIL, mission, activities, value, etc.
  • Serve as ambassadors for NCIL in the corporate world and to the public
  • Help “sell” the mission of NCIL and its efforts to achieve it
  • Foster “power” relationships for NCIL and “buy in”

NCIL was awarded $125,000 from the Craig Neilson Foundation. NCIL issued an RFP to grant these funds to CILs to provide a wide range of IL services to consumers with Spinal cord injuries. Grants were awarded to multiple CIL’s in January of 2015. NCIL was also recently included as a partner in a transition grant.

NCIL applied for a Robert Wood Johnson grant to fund an annual advocacy award for an advocate working on issues related to health disparities. Unfortunately, funding for this proposal was not awarded.

NCIL received and HSC Foundation Grants grant for $2,500 to fund office space. NCIL also received funding for a Youth Transition fellowship, owning our stories project ($5,000), and the Autistic Self Advocacy, Real Talk Project (on sexuality at $25,000). The Mitsubishi Foundation contributed $5,000 to get young people to the annual conference. Walmart contributed $5,000.

Summary of progress on Strategic Plan responsibilities: The RD Subcommittee is continuing to focus on the resource development aspects of the strategic plan.

Matters Requiring Action by the Governing Board: None

Position/Committee Goals and Objectives until the next Governing Board Meeting: The goal of the Resource Development Subcommittee is to support and further the resource generating outcomes and capacity of NCIL to ensure long term sustainability.

Legislative & Advocacy Committee Report

Prepared by: Mark Derry, Vice President

Description of Committee: The Legislative and Advocacy (L&A) Committee consists of the Chairs of the legislative and advocacy subcommittees and the Chair of the Regional Representatives. The L&A Committee shall undertake activities as directed by the President, as well as selecting a recipient or recipients for NCIL’s annual advocacy awards. The Vice President shall Chair the Legislative and Advocacy Committee and monitor the activities of the legislative and advocacy subcommittees. The function of the L & A Committee is to develop and implement NCIL’s legislative and advocacy agenda.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Chaired monthly Legislative & Advocacy (L & A) Committee meetings
  • Attended monthly Executive Committee meetings
  • Attended many L&A Subcommittees’ monthly conference calls at least once during this period, to touch base with each Subcommittee Chair, and more regularly on certain calls where necessary to maintain a regular connection to the Board to react to the issues in a timely manner as hot topics occur.
  • Provided NCIL Committee Chair Training in October for all NCIL Chairs, including updating the training manual and slide presentation for NCIL archives.
  • With the help of NCIL Policy Analyst Lindsay Baran, completed the process of the new L&A Priorities Survey of the NCIL membership, and the compiled results were approved by the NCIL Board for use with the 114th Congress.
  • Participated in planning and organizing the 2015 Hill Briefing.
  • Received NCIL Board approval for long standing NCIL Task Forces (Mental Health Civil Rights, Task Force on Violence and Abuse, Voting Rights Task Force, and ADRC Task Force) to be considered standing Subcommittees of NCIL. Each of their missions has expanded, to become more of an ongoing commitment on behalf of the membership since their initial creation as ad hoc groups to advise the President and Board on a specific issue. The ongoing importance of each Task Force to the membership has been demonstrated by the consistent involvement of Individual Members in their work.
  • Orchestrated the submission of updates by Subcommittee Chairs for the L&A Policy Booklet to NCIL Communications Coordinator (guru) Eleanor Canter for the Spring Edition (Congressional Briefing) and Summer (Annual Conference).
  • Volunteered for a week as Co-Pilot, Coordinator, and Presenter on the ADA Legacy Tour Bus, representing NCIL in that effort, at Tour Stops in West Virginia, North Carolina, South Carolina, and Georgia.
  • Attended several meetings in support of various (three) amicus briefs – two as sign-on organization, and one as a submitter.
  • Helped to organize and provide the NCIL National Policy Update Call in June, in preparation for the 2015 Annual Conference and Hill Visits.
  • Attended, and presented at the West Virginia Disability Caucus, once again concentrating on developing youth participation and leadership.
  • Work continues on the creation of the NCIL ADA Survey Academy, with a goal of Fall 2015 for the kickoff of the project. The Agenda components were beta tested at survey trainings at Bay Area CIL, on the Eastern Shore of MD in October and November 2014, and the three day Academy Agenda is ready, booking Host Sites begins once additional plans for the possibilities and merits of a NCIL Surveyor Network as a bi-product of the initial project are finalized, and following additional discussions with possible future project partners like the National ADA Network.

Summary of progress on Strategic Plan responsibilities (if applicable): Currently taking action per the direction of the President, and have been focused on responsibilities of L&A Committee in current Strategic Plan updates. NCIL VP/L&A Chair has been participating with NCIL Executive Director and legal team regarding possible legal actions. Much effort by subcommittee chairs, Region Reps, and staff went into preparation for the Congressional Reception for the new 114th Congress, which was one first step toward working on developing IL Champions in Congress.

Matters requiring action by the Board/Members: None at this time.

Committee goals and objectives for the next year:

  • Continue working through Subcommittee personnel and operational issues and NCIL policies regarding Subcommittees.
  • Make tangible progress on Strategic Plan responsibilities of the L&A Committee.
  • Assist the Legislative & Advocacy Subcommittees and Chairs in their efforts to promote NCIL’s advocacy positions and activities.
  • Develop more opportunities for Centers and Individual members to be trained in accessibility, for local resource development at the CILs and effective advocacy efforts, as well as fee-for-service training and consulting possibilities for CILs across the country thru new networking, and as a revenue resource for NCIL.

Other: The NCIL L&A Chair will provide any additional updates and information on breaking developments in the Vice President’s Report during the Board Meeting.

Thanks as always to the continued support of the NCIL Staff who help make the NCIL Legislative & Advocacy Committee’s work possible, and thanks to all the NCIL Subcommittee and Task Force Chairs for all their hard work for IL!

ADA / Civil Rights Subcommittee Report

Prepared by: Dara Baldwin and Mike Bachhuber, Co-Chairs

Description of Committee: The Subcommittee educates and informs the National Council On Independent Living (NCIL) membership of legislative, administrative and judicial developments that impact the rights of people with disabilities, and develops appropriate and effective steps for the NCIL membership to implement in response.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

We evaluated various administrative initiatives and prepared responses, including “fair pay” Exec. Order, Home- and Community-based services regulation, President’s 21st Century Policy TF, DOJ Disability Voting Guidance, HUD Affirmatively Furthering Fair Housing Initiative, EEOC Wellness program regs.

We followed ADA bills and HR 1927 re: class actions. We worked with CCD and MH CR Subcommittee to oppose bills decreasing civil rights for people with psychiatric disabilities.

On judicial issues, we followed a number of decisions and worked on the San Francisco v. Sheehan sign-on. We worked with the VR Subcommittee on voter registration barriers case.

Matters requiring action by the Board/Members: None currently

Committee goals and objectives for the next year: The committee has been discussing what changes, if any, are needed. The Subcommittee has decided to address the Rights of Parents with Disabilities as one of our legislative outreach goals – with the goal to obtain Federal Law to protect the Rights of Parents with Disabilities.

ADRC Subcommittee Report

Prepared by: Mary Margaret Moore and Ericka Reil with great support from NCIL staff Lindsay Baran

Description of Committee: The purpose the ADRC subcommittee is to address NCIL’s position on Aging & Disability Resource Centers (ADRCs) to ensure that the NCIL ADRC position on IL principles and CIL / SILC equal partnerships occur in every ADRC

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

Some of the activities that have been done by the subcommittee since July 30 have been: Meetings that are held monthly by the members of the subcommittee. Input given to ACL on trainings that are going to be forthcoming for options counseling/no wrong door and piloted nationally, input on person centered planning training, sharing of state by state updates on struggles and successes with ADRCs, and general support between subcommittee members to stand firm in equal voice for CILS and IL tenets in state planning and implementation of ADRCs and Options counseling, Planning and presenting on ADRCs insuring IL voice and values included both nationally and at the local level on IL values and strategies to be inclusive of independent living centers as representatives of those living with disabilities in policy, procedure and implementation of ADRCs, Options counseling, person centered planning, and No Wrong Door systems and services.

Matters requiring action by the Board/Members: None at this time.

Committee goals and objectives for the next year:

The main goal is to continue to demand and require nothing about us without us. We have found that a lot of planning for ADRCs has been without the disability perspective. Or inclusion. We do not plan on being silent. We will continue to meet and attend meetings. We will also very vigilant on what conferences are happening and when so that we can make sure that we, as a group can try to get into them to make sure that the disability perspective on ADRC is being looked upon. We will also call upon NCIL to help us obtain these goals.

Other: Paying close attention to what ACL is doing on No Wrong Door and ADRCs and other initiatives that may be pitting CILS against AAAs or others for seat at table on policy, procedures, trainings, etc., particularly new guidelines from ACL.

Education Subcommittee Report

Prepared by: Maureen Hollowell, Chair

Description of Committee:

The Education Subcommittee monitors and participates in the development and implementation of education-related federal legislation and policy. The Subcommittee encourages grassroots’ efforts to advocate for strong education policy and implementation at the federal, state and local level.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Discussed the development of state policies regarding the use of restraints and seclusion.
  • During subcommittee conference calls discussed the new IL fifth core service as it relates to youth transition.
  • Participated in a USDOE conference call about communication with students with disabilities in public elementary and secondary schools.
  • Participated in meetings with APRAIS (Alliance to Prevent Restraint, Aversive Interventions and Seclusion) to discuss the Keeping All Students Safe Act. Communicated NCIL’s support of the legislation to members of Congress.
  • Participated in conference calls of the IDEA Partnership’s Transition Community of Practice. The calls focused on highlighting transition best practices identified by State education agencies.
  • Participated in CCD Education Task Force meetings.
  • Monitored the progress of S1177-Every Child Achieves Act and communicated concerns with the bill to members of Congress.

Matters requiring action by the Board/Members: none

Committee goals and objectives for the next year:

  • Expand Subcommittee membership and participation.
  • Complete a set of statements regarding transition and students with disabilities.
  • Advocate for strong federal language that will forbid the use of restraint except in emergencies threatening physical safety.
  • Monitor legislation and advocate to ensure school accountability is not diminished.

Emergency Preparedness Subcommittee Report

Prepared by: Christy Dunaway, Chairperson

Description of Committee: The purpose of the NCIL Emergency Preparedness Subcommittee is to address the need for people with disabilities to be involved in the development, assessment, and implementation of disaster plans, at all stages of a disaster.

Summary of activities conducted since the Fall Board Meeting (since September 25, 2014)

  • Memorandum of Understanding between NCIL and the American Red Cross was signed during a ceremony on July 31 at the Annual Conference.
  • We created a document entitled “Building Relationships with Local Emergency Responders” with a letter of introduction. These documents were published in the December Wham! Newsletter with requests to distribute to CIL’s and SILC’s.
  • We are working with the Centers for Disease Control to develop a possible partnership to ensure that people with disabilities receive appropriate and accessible services during health related emergencies, i.e., influenza outbreaks, Ebola, etc.
  • We have developed and disseminated a survey through Wham newsletter to NCIL membership to determine the capacity of CIL’s to respond to disaster.
  • We developed a joint letter of agreement between NCIL and American Red Cross which has been signed by directors of both entities and published on NCIL’s website and distributed to ARC personnel nationwide.
  • We have continued to work closely with the ARC and FEMA to ensure that individuals with disabilities are well served before, during and after disaster.

Matters requiring action by the Board/Members: Nothing at this time.

Committee goals and objectives for the next year:

  • Review MOU’s with National Red Cross and FEMA and ensure that all parties are fulfilling the responsibilities as set forth in the agreements.

Employment / Social Security Subcommittee Report

Prepared by: Justin Harford, Co-Chair

Description of Committee: The Employment-Social Security Subcommittee works in the field and with NCIL staff, members and community based partners to monitor, interact with, and improve Social Security public policies that affect adults, youth, and children with disabilities, with the emphasis on increasing employment and economic equity. We report timely to the NCIL Board and members, while performing community-based policy activities with NCIL members, NCIL collaborative policy partners, and consumers of Social Security benefits.

Summary of activities conducted since the 2014 NCIL Annual Conference:

  • The subcommittee has met regularly, on average monthly, with subcommittee member participation averaging about 12 to 15 or more individual NCIL members per call. Returning subcommittee member Susan Webb presented in December 2014 on SSDI policy reform principles and directions under development at the national level. The presentation initiated a seven month subcommittee focus on NCIL recommendations in this topic area. Members decided to meet twice a month to bring guest speakers to the subcommittee on topics related to SSDI reforms, employment and employment supports.
  • New subcommittee member Alex Ghenis developed an Excel based Policy Tool comparing a range of SSDI and SSI benefit offset designs, which has been shared and used by Congressional staff and other disability organizations, for example, CCD.
  • Co-Chair, Justin Harford, engaged with over two hundred young adults from the blind community about CareerACCESS, recruiting ten individuals for our policy efforts.
  • Harford carried out a Social Security workshop in Berkeley for students with disabilities, to educate them on proposed CareerACCESS reforms and ways they can help.
  • Subcommittee members published blog entries from young adults with disabilities at www.ourCareerAccess.org and several articles of interest for young adults on CareerACCESS and in the NCIL WHam.
  • Approximately 5 + new individual NCIL members have joined the subcommittee.

Summary of progress on Strategic Plan responsibilities (if applicable):

  • Published a complete first iteration of SSDI benefit offset reforms for working SSDI beneficiaries in the NCIL Policy Booklet for the 2015 Annual Conference.
  • Subcommittee members worked on refining the CareerACCESS proposal with WID and PolicyWorks, and expanded the range of young professionals who are working on it.
  • Co-Chair Harford and subcommittee members Barbara Butz, Steve Allen, and Neil Jacobson have planned for and scheduled meetings during the NCIL Annual Conference with SSA, other federal agencies, an NCD public hearing focused on youth issues, Congressional staff and Members, and the Social Security Advisory Board.
  • NCIL 2015 Workshop proposal submitted on the topic of the SSA Definition of Disability with Justin Harford as facilitator; proposal has morphed into being the main topic for the NCIL Hot Topics Session for NCIL Conference registrants on July 27, 1pm, Main Ballroom.
  • Updated NCIL’s Legislative and Policy Guide twice, 1) for NCIL’s next Legislative Briefing 2015 and 2) for the Annual Conference Policy Guide for Capitol Hill visits.

Matters requiring action by the Board/Members:

  • None at this time

Committee goals and objectives for the coming year:

  • Expand on a strategic plan with young professionals to reach out to more individuals with disabilities interested in the SSI CareerACCESS policy initiative, with the purpose of soliciting their stories, input, engagement, and support.
  • Continue to recruit qualified and interested individuals to the subcommittee particularly young adults with disabilities.
  • Continue to publish blog and other materials on www.ourCareerAccess.org, and to distribute them through social media including Twitter and Facebook; continue to gather signatures for the CareerACCESS initiative petition.
  • Monitor, deliberate on, and engage with related SSDI 2015-2016 reform initiatives

Healthcare / Personal Assistance Services Subcommittee Report

Prepared by: Bruce Darling, Co-Chair

Description of Committee: The PAS/Healthcare Subcommittee monitors and advocates on personal assistance services and healthcare issues impacting people with disabilities, including durable medical equipment, disability discrimination in healthcare, assisted suicide and euthanasia.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

The PAS/Healthcare Subcommittee:

  • Crafted the new ADA-version of the Community Integration Act which establishes a new title of the Americans with Disabilities Act that strengthens and clarifies the integration mandate and expands covered entities to include insurance providers who pay for Long Term Services and Supports;
  • Tracking and monitoring implementation of the Community First Choice Option and supporting state level advocacy to increase the states that select CFC;
  • Coordinated the NCIL response to the companionship changes because these changes will force individuals with disabilities into institutions and hurt attendants. This included mobilizing grassroots support and crafting NCIL’s amicus brief in the legal case opposing the DOL changes;
  • Supported efforts to assure access to Durable Medical Equipment and Complex Rehabilitation Technology;
  • Monitored efforts to legalize assisted suicide/euthanasia

Matters requiring action by the Board/Members: None at this time.

Committee goals and objectives for the next year: Continue to coordinate efforts in these issue areas, including coordinating NCIL’s response to the companionship rule changes, efforts to increase selection of the Community First Choice Option, securing federal ADA legislation that addresses community living and integration, and opposing efforts to legalize assisted suicide.

Other: Thanks to the members of the subcommittee for their continued hard work on these issues.

Housing Subcommittee Report

Prepared by: Brian Peters, Chair

Description of Committee: To promote the principles of affordable, accessible, healthy/nontoxic, decent, safe and integrated housing for person with disabilities.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Discussed legislative bills
  • Discussed appropriations
  • Member attended HUD Disability Taskforce Meetings
  • Sent a letter to HUD regarding the use of census data to document the need to increase the 5%-1%-1% accessibility minimum for federally funded new construction housing.

Matters requiring action by the Board/Members: N/A

Committee goals and objectives for the next year:

  1. To monitor and respond to the housing related federal legislation affection persons with disabilities/affordable housing.
  2. To promote the NCIL Housing Position Paper and the issues identified within.
  3. To educate policymakers on the housing needs of persons with varying disabilities.
  4. To monitor regulatory changes affecting persons with disabilities in programs.

Rehab Act / IL Funding Subcommittee Report

Prepared by: Shannon Jones and Diana Garrett, Co-Chairs

Description of Committee: “The Rehab Act Subcommittee is responsible for analyzing, interpreting, and advocating for needed changes to the statute and regulations. Membership on this subcommittee requires consistent contribution by all members. This contribution involves routine attendance to monthly subcommittee meetings, participation in the meetings and e-mail discussions, assistance with research and planning efforts by the subcommittee, and voluntary support of sharing in the cost of conference calls.”

Summary of activities conducted since the last Annual Meeting:

The Subcommittee:

  1. NCIL President appointed WIOA Task Force to develop rules and regs for Title VII of WIOA.
  2. Task Force was divided into 3 work groups; CILs, SILCs, and ILA. Draft copies of rules and regs were approved by Rehab committee and NCIL board.
  3. After NCIL member feedback, the Task Force met again to make several edits and clarifications
  4. NCILs recommendations for rules and regs have been sent to ACL for their consideration
  5. Task Force also completed and submitted to ACL recommendations for SILC Standards and Indicators.
  6. Committee developed and submitted comments to DOE/RSA regarding proposed rulemaking for Title I, Sec 110, Innovation and Expansion (I&E) funds
  7. Submitted funding proposal for an additional $200M for CILs to House and Senate Appropriations committees
  8. Developed Action Alert for all NCIL members to respond to ACL regarding the release of their guidance document

Matters requiring action by the Board/Members: None

Committee goals and objectives for the next year:

  1. To seek transparent implementation of WIOA and successful transfer of IL programs to HHS/ACL.
  2. To assure that the principles of independent living are reflected in the practices of those providing assistance under the Act;
  3. To assure that those charged with enforcement under the Act carry out their responsibilities.
  4. Increase funding for IL program by $200,000

Transportation Subcommittee Report

Prepared by: Cliff Perez and Jeff Iseman, Co-chairs

Description of Committee:

The NCIL Policy Subcommittee on Transportation will examine and discuss at our bi-monthly teleconference calls the trends, direction, legislation and transportation positions of other organizations interested in transportation services. Whenever possible, we will have speakers on our calls from other organizations, including from the U.S. Department of Transportation, working to enhance transportation services and in particular as it pertains to persons with disabilities. Action Alerts will be sent out for action to Committee Members as well as informational bulletins.

Accessible transportation is critical for persons with disabilities to live more independently within their own community. The lack of accessible transportation options is one of the most significant barriers facing people with disabilities toward maximizing community integration. By implementing policies that enhance accessible, universal design and affordable public and private transportation, people with disabilities can attend school, obtain & maintain employment, make medical visits, shop, travel within the communities of their choice, and fully participate in the American Dream.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

The Committee continues to focus on bringing awareness about the lack of wheelchair accessible private transportation primarily pertaining to taxi and now Ride Share (Transportation Networking Companies: Uber, Lyft, Sidecar, etc.) services. We are also concentrating on the Reauthorization of the Transportation Act (successor to MAP-21) that has had one recent short term extension (10 months -May 31, 2015 then 2 months until July 31, 2015) with another likely to be approved by July 31, 2015 for 5 months (would run out December 31, 2015) . We have partnered with other like-minded organizations to maximize our ability to effectively address vital transportation issues as they affect Americans with disabilities. With the full support of the NCIL Board, Clifton Perez, Co-Chair NCIL Subcommittee on Transportation continues representing NCIL on the Rail Vehicles Access Advisory Committee. We are also focusing more now on air travel, with the FAA Reauthorization due September 30, 2015 and hope for provisions from the Air Access Carrier Act to be included. We have had members submit articles for the NCIL WHAM and one alert for support for Federal Transportation Reauthorization. We continue to monitor efforts on Amtrak ADA compliance issues at stations. Some members of our group participated in the NCD MTG held at the University of Pittsburgh in Pittsburgh (Jeff and Madonna Long on transportation panels) on May 4-5 where transportation and employment were primary topics with related media articles.

We continue to meet on a bi-monthly basis: on odd numbered months on the 3rd Wednesday at 3:00PM EST. July 15th was our most recent meeting. Attendance currently varies between 5-15 members. US DOT has joined us on several occasions and provides updates via phone and e-mail.

Matters requiring action by the Board/Members: At present there is nothing.

Committee goals and objectives for the next year:

  1. Monitor and support a comprehensive Federal transportation package with sustainable funding which includes address the needs of individuals with disabilities (all modes): mass and paratransit systems, high speed rail and related ADA compliance (Amtrak, regional rail systems); sustainable/livable communities and address and increase accessible transportation options-current extension runs out July 31, 2015 and its successor is slated to be December 31, 2015
  2. Monitor and support a Federal Aviation Administration (FAA) package that includes addressing the needs of persons with disabilities –current extension runs out September 30, 2015. ADA covers folks up to the airline ticket counter; FAA (reauthorization) addresses air travel beyond that point.
  3. Possible reintroduction of Legislation in Congress (prior was S. 556 under now retired Senator Harkin —Air Carrier Access Amendments). This may also be included as part of the FAA Reauthorization. We will continue to monitor this issue and making the appropriate contacts both with Congressional leaders and members to encourage them to support the reintroduction of legislation.
  4. Long term goal: to encourage Congress to conduct hearings and draft legislation to address the lack of wheelchair accessible vehicles within the private transportation industry (taxis).
  5. Monitor and offer public input on the Ride Share / Transportation Networking Companies (TNCs)-Uber, Lyft, Sidecar, others. TNCs are another possible option for folks with disabilities to augment, not replace para-transit and cabs. TNCs must be fully accessible to people with wheel chairs and scooters. US DOJ has weighed on the side of the disability community in a few cases regarding civil rights / discrimination issues.
  6. Support efforts for sustainable Amtrak and other high speed rail systems which include funding and ADA compliance. A recent report released by the US DOJ states that less than 20 Amtrak stations fully meet ADA accessibility criteria. Related to this is the Passenger Rail Reform and Investment Act of 2015 Legislation (HR 749) passed by the House this spring with a strong bipartisan vote sitting in the US Senate Committee on Commerce, Science and Transportation.
  7. Follow Safe Streets Act of 2015 (HR 2071) that ensures the safety of all users of the transportation system, including pedestrians, bicyclists, transit users, children, older individuals, and individuals with disabilities, as they travel on and across federally funded streets and highways.

Continue to monitor legislative bills on transportation and when necessary, put out Action Alerts to encourage people to take action on a particular issue related to transportation legislation. Monitor other Position Papers by other disability related organizations. When opportunity presents itself, provide testimony on pertinent transportation issues. And, continue to raise awareness on the lack of wheelchair accessible taxis and forms of Demand Response Systems within the private industry, as well as to keep everyone informed and ready to take action when Congress gets around to fully addressing the entire Transportation Reauthorization Act.


Since the complete Transportation Act has not been passed as of this time, we will still be focusing on the below issues, including any other transportation issue raised within our Committee.

  1. Rural transportation services: NCIL strongly supports increased availability and greater access to affordable and accessible rural transportation, as well as the overall public transportation system.
  2. Private Transportation Services: Legislation is needed to increase the number and availability of accessible vehicles within the private transportation industry: taxis limousines, shuttle service, car rentals, buses, trains and now Ride Share / TNCs
  3. Air Travel: it is clearly time for the Airline Industry to begin making their airplanes more accessible for persons with disabilities especially as it pertains to wheelchair users. Wheelchair users should be able to board an aircraft in their own wheelchair, transfer to a seat, have their wheelchair stored on the plain and be able to transfer back into their wheelchair upon arrival and departing the plane along with everyone else.

Violence and Abuse Subcommittee Report

Prepared by: Jan Derry and Roberta Sick, Co-Chairs

Description of Committee: The overall purpose of this task force is to bring awareness about violence and abuse among people with disabilities, to NCIL and its centers and membership. Our effort is to help educate these members and to get training out there so that programs can know what to do or what the issues are so that they can become involved.

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014):

  • Following NCIL Conference had several calls with Kathy Greenlee and her staff to assist her in preparing for a conference with APS and gaining insight into these issues as they related to people with disabilities. This especially dealt with access issues, effective communication, trauma based interviewing and barriers to reporting including fear.
  • Prepared Policy Brief for Inclusion in Conference Policy Booklet
  • Moved from Task Force status to Subcommittee as a result of longevity of group.
  • Maintained regular contact with members through meetings and email.
  • Submitted educational piece in the WHAM on Trafficking and its relation to CRPD and financial exploitation with an emphasis on exploitation of seniors with disabilities.
  • Added several new members to the Subcommittee and updated members list
  • Wrote resolution for submission at 2015 Conference on APS

Matters requiring action by the Board/Members: Please email Subcommittee Co-Chairs, jderry@nwvcil.org and sick@uark.edu any information from experiences by consumers or centers that could shed light on issues of violence and abuse especially where there has been APS involvement.

Committee goals and objectives for the next year:

The NCIL Subcommittee on Violence and Abuse of People with Disabilities purpose is to assist NCIL in fulfilling this position by being the conduit to:

1. Educate and train the NCIL membership on violence and abuse

  • To utilize existing avenues to reach the greatest number of CIL staff, management and boards; including but not limited to WhAM, IL Net, NCIL conference, other national conferences, etc.
  • To work with NCIL in developing a website where NCIL members can access information and resources; and where members can post questions and gain access to other types of technical assistance.

2. To advocate for justice and equal access to victim services

3. To ensure that the voices of persons with disabilities are included in current and future legislative activities that address crimes, victimization, and abuse.

Other: Please give any feedback to this committee regarding any topic related to violence and abuse that should be discussed within this committee or that have created difficulties in getting services for victims.

Voting Rights Subcommittee Report

Prepared by: Kathy Hoell and Jim Dickson, Co-Chair

Description of Committee: The mission of the NCIL ADA/Civil Rights Voting Workgroup is to increase the participation of people with disabilities in the electoral process in order to maximize our ability to affect federal, state, and local political priorities. This will include registering and educating all consumers, staff, family and allies to vote. This will include contacting political candidates to determine their positions on various disability issues. This includes encouraging people with disabilities to become candidates for public office at all levels of government

Summary of activities conducted since the 2014 Annual Meeting (since July 30, 2014)

  • Participated actively with Leadership Conference on Civil & Human rights and Coalition they put together to develop language to include people with disabilities in Voting Right Act.
  • Wrote 2 Wham articles
  • Had 10 meetings
  • Members worked with their local election officials to increase accessibility in their communities
  • Successful participation in efforts to support appointments to Election Assistance Commission (EAC) and because of our efforts disability will be focus of their mission
  • EAC revised policies
  • Participated in forums and conference organized by EAC, National Institute on Standards & Technology, National Association of Secretary of State, National Association of State Election Directors and Presidents Commission on Election Administration
  • Preparing presentation on CIL involvement in Get out the vote efforts
  • Obtained $20,000.00 Grant for NCIL to support and expand the work of the committee.

Executive Director’s Report

Submitted by: Kelly Buckland, Executive Director

I.  Governance: Board and Committee Activities

The staff remains actively engaged with the Board, Committee Chairs and members at virtually every level of NCIL.  Communications between the staff, Governing Board, the committees and subcommittees remain very good and we, as always, are extremely busy.  We have increased Lindsay to full time beginning January 1st 2015.  She is Half time disability and aging specialist and half time Policy Analyst.

Staff and board have met with the ACL Staff and the RSA Commissioner, as well as the Administrator of the Administration on Intellectual and Developmental Disabilities and the Deputy Administrator of the Administration on Community Living, and Acting Director of the ILA around the establishment of the ILA numerous times.

NCIL’s presence on various social media sites continues to be very strong!  With over 4,000 followers on Facebook and over 2500 Twitter followers between the NCIL organization and NCIL director accounts, NCIL is able to quickly and easily communicate with a larger audience outside of our membership. Followers have reacted enthusiastically to being able to follow updates during hearings, online Q&A opportunities, and access alerts.

Since our last annual meeting I have been in Ohio at the Vera Institute of Justice meeting on “Ending Abuse of Children with Disabilities, the Centene Advisory board in St.Louis, New Jersey to provide training on WIOA and Houston, Texas for the RTC conference and planning retreat,  NCIL and IL NET provided a Webinar on Parenting with a Disability entitled “The New Frontier of Disability Rights: Introduction to Child-Custody Rights of Parents with Disabilities” and I was one of the main presenters. I have been in Atlanta, Georgia for the AT&T Disability Advisory Committee, Albuquerque, New Mexico for the APRIL Conference, Washington, DC for the United Health Care Disability Advisory Committee, San Diego California for the SILC Congress and Mountain View, California for the Google World Summit on Accessibility.

I was a Keynote speaker at the World Institute on Disability and NCIL has conducted a webinar on WIOA and the changes to IL as well as webinars with the IRS, and AA Homecare on free tax assistance and the bills in congress dealing with DME.

I have continued to work hard on making the Independent Living Administration a reality and I have presented the NCIL PowerPoint presentation on the new law and the changes to IL to the states of New York, Pennsylvania, and New Jersey. I have also presented the slide show at SILC Congress and in Texas at their Statewide Conference. Traveled to Iowa and met with all of the CIL Directors there.  I attended the White House Roundtable on the ADA, The White House Summit on Employment of People with Disabilities, a White House meeting on the ADA and Wellness programs.

II. Finances and Financial Management

NCIL’s finances are strong and we are projecting ending the year in the black for Three years in a row.  We increased our policy staff and added a Youth Fellow. The Finance Committee and Executive Committee have been following the budget closely and we have been working hard to make sure we maintain a budget that is in the black.  The Audit for fiscal year 2014 has been completed and approved by the Finance Committee and the Executive Committee and will need to  be approved by the board at  this meeting.  We continue to manage a large number of grants.  A project update is included with this report. The Finance Committee led by our Treasurer, Roger Howard, continues to be actively engaged in all aspects of NCIL’s finances and helped us select a new auditor.

III.  Resource Development

Phil Pangrazio, is currently serving as Chair of the Resource Development Committee. Here is a list of projects we are working on to bring new resources into NCIL.

ABC Medical: NCIL continues to get a small amount of funds from ABC Medical.  We need to attract more people to choose ABC for their medical supplies.

ABT: (Assistive Bath Technology): NCIL has an agreement with ABT that provides that NCIL will receive revenue for each unit bought through the NCIL website.

Amazon Smile: When you make a purchase on Amazon Smile, NCIL gets a cut.

The Craig Nielsen Foundation: We received a Quality of Life grant in the amount of $125,000.  We sent out an RFP, received over 20 applications and awarded 7 mini grants to CILs.

Corporate Development Council: With the assistance of our Consultant, Helena Berger, NCIL has established a “Corporate Development Council” as outlined in our strategic plan.  We have members from a number of corporations including, Verizon, Bender Consulting, Centene, Anthem, Derry & Associates, USBLN AND Wal-Mart serving on the council. We are currently having monthly meetings. This is very exciting stuff and I think could be of great benefit to NCIL for years to come.

IV. Membership

NCIL’s 2015 membership renewal drive has been going very well. We want to thank our members for remaining committed to NCIL in tough financial times.  Our renewal pace was outstanding this year.  We’re well on our way – almost 98% – to meeting our 2015 membership revenue goal of $265,000   And, most importantly, we have a record-breaking 968 members of NCIL! CIL

  • July 2015: 193
  • Sept. 2014: 201
  • Sept. 2013: 203
  • Sept. 2012: 211
  • Sept. 2011: 209
  • Sept. 2010: 210


  • July 2015: 44
  • Sept. 2014: 44
  • Sept. 2013: 39
  • Sept. 2012: 37
  • Sept. 2011: 37
  • Sept. 2010: 35


  • July 2015: 17
  • Sept. 2014: 18
  • Sept. 2013: 20
  • Sept. 2012: 21
  • Sept. 2011: 21
  • Sept. 2010: 27


  • July 2015: 714
  • Sept. 2014: 574
  • Sept. 2013: 498
  • Sept. 2012: 544
  • Sept. 2011: 544
  • Sept. 2010: 533

Total Income

  • July 2015: $259,012
  • Sept. 2014: 263,618
  • Sept. 2013: $255,603
  • Sept. 2012: $280,627
  • Sept. 2011: $296,141
  • Sept. 2010: $299,705

V.  IL Net The IL NET training project is NCIL’s largest grant project.  Last October, NCIL began activities under a new 5-year round of the project.  Funding and activities remain the same under the new contract.  Staff is thrilled to have been funded again for this critical project.  NCIL and ILRU have been continuously funded to operate this project since its inception in 1994. Comprised of the CIL NET and SILC NET national training and technical assistance projects, the IL NET provides information and trainings to CILs and SILCs in a variety of formats and media.  NCIL’s primary requirements are to coordinate and provide national onsite trainings, teleconferences, and webinars on current and emerging issues in the Independent Living Movement; such as: excellence in CIL and SILC management; development, implementation, and monitoring of State Plans for Independent Living; best practices in the provision of CIL core services, advocacy and community organizing for nursing home transition, housing, and transportation; support for new CILs; and other issues.

  • IL NET – Currently in Year 3 of 5

Grant Period: 10/01/2012 – 9/31/2017. NCIL has partnered with ILRU, APRIL, and Utah State University’s Center for People with Disabilities to provide training, technical assistance, and other education and management resources to Centers for Independent Living and Statewide Independent Living Councils.  This partnership operates under a contract from RSA, Department of Education.  This is a 5-year project.  A new subcontract is required each of the five years. NCIL has been involved in the IL-NET project since its genesis in 1994.  We are currently in the third year of this recently renewed five-year project.  NCIL will receive $366,116 in FY2015.


Grant Period: Approximately 10/01/10 – 9/30/2015

NCIL will coordinate and host an additional series of webinars for the New Community Opportunities project, an extension of the current IL NET project made possible through Title VII Training & TA Funds from the ARRA. The project will provide training and technical assistance for centers for independent living, statewide independent living councils and other eligible agencies with webinars in three primary topic areas: 1) transition from nursing facilities to the community; 2) assisting youth with disabilities in their transition from school to secondary education, employment, and independent living; and, 3) strategies to address the needs of underserved populations and underserved geographic areas.

This is a five-year, $100,000 project; NCIL is currently in Year 5 of this project and will receive $20,000 in each of the five project years.

VI. Other Grants and Projects

University of Kansas

Grant Period: 10/01/2011 – 9/30/2016

Contact: Glen White, KU

Phone: 785-864-4095

Email: glen@ku.edu

NCIL has been subcontracted by the University of Kansas Research & Training Center on Community Living to review research material, disseminate information, and provide workshop space at the Annual Conference.

We are currently in Year 4 of this 5-year contract.  NCIL will receive $20,000 in FY2015.

National institute on disability rehabilitation research / Burton blatt institute

Grant Period: TBD

Contact: Meera Adya

Phone: 202.296.5393

Email: madya@law.syr.edu

NCIL will work closely with BBI personnel working on the project and with other team members to plan and assist with distribution of electronic surveys to CILs and IL stakeholders regarding rehabilitation technology. NCIL is currently negotiating a one-year project renewal to continue activities from the original five-year project, which operated from 2009-2014.  NCIL is seeking $9,500 in FY2015.


Grant Period: October 1, 2013 – September 30, 2015

Contact: Karen McCulloch

Phone: 202-296-2040

Email: kmcculloh@ndi-inc.org

NCIL partnered with the National Disability Institute to submit a proposal to establish Funding for 5 years was made available to establish a National Training and Technical Assistance Center on Employment and Economic Self-Sufficiency for People with Disabilities. This project is budgeted for $25,000 for this year. NCIL will be an active member of the Consortium to direct and manage the ODEP-funded National Center on Leadership for Employment and Advancement of Citizens with Disabilities (LEAD).  With the other Consortium members, we share a common set of values about the power of collaboration of the disability, government, and employer communities to identify and bring to scale new and innovative models and strategies to promote the employment and economic advancement of people with disabilities nationwide. NCIL is currently negotiating a one-year project renewal to continue activities from the original project.  NCIL is seeking $5,000 in FY2015.


Grant Period: September 19, 2014 – September 19, 2015

Contact: Mark Johnson

Phone: 404-350-7490

Email: Mark_johnson@shepherd.org

The ADA Legacy Project has contracted NCIL to serve as its fiscal agent.  NCIL will process and record all revenue and expenses – primarily for the 25th Anniversary of the ADA event on July 26, 2015.  The agreement will be reviewed annually and is likely to continue through the 25th Anniversary event in 2015. NCIL will receive 5% of all incoming revenue as a fee for its services.

US Administration on community living / Lewin group

Grant Period: October 1, 2013 – September 30, 2018

Contact: Elizabeth Leef

The US Administration on Community Living at HHS has agreed to fund NCIL for $50,000 each year to continue NCIL’s work on aging and disability.  NCIL will serve as a subcontractor to the Lewin Group to provide technical assistance, outreach, and other resources to improve collaboration and understanding between CILs, SILCs, IL Associations, and ADRCs. This continuing project has been extended for five years; NCIL will receive $50,295 each year.


Grant Period: October 1, 2014 – July 31, 2015

Contact: Sara Tribe

Phone: 202 .898.2578 x305

Email: stribe@nasuad.org

NCIL has subcontracted with NASUAD to advise and improve the National I&R Support Center through the following activities.  Collaborate with Support Center staff on the development and distribution of an Every-Other-Year Aging and Disability Networks Survey. Assist with training and technical assistance for the Support Center.  Collaborate with the Support Center on the work of, and participate as a member in 1) the National I&R Support Center Advisory Committee, 2) Disability training short-term workgroup, and 3) National Advisory Council on Aging and Disability. Assist the Support Center in its efforts to provide the aging and disability I&R field with quality assurance (QA) measures. Advise and assist in the development of data measures to track improvement in person-centered approaches. NCIL will receive $25,000 in FY2015 for its work on this project.

National institute on disability rehabilitation research / TEMPLE UNIVERSITY

Grant Period: TBD

Contact: Andrea Bilger

Phone: 215-204-6779

Email: abilger@temple.edu

NCIL has subcontracted with Temple University to improve parental rights for people with psychiatric disabilities.  As a consultant on this project, Kelly Buckland will work with Temple University on their knowledge translation project that will create a parenting consortium focused on the dissemination of effective parenting programs, policies and practices for adults with psychiatric disabilities.  Specifically, NCIL will support Temple’s efforts to advance the knowledge regarding the effectiveness of the Idaho Statute, which will be used as part of technical assistance we will provide to states interested in bringing about legislative change by advancing the parenting rights of individuals with psychiatric disabilities. The project has been awarded, but NCIL is awaiting further information, including funding amounts.


Grant Period: December 31, 2014 – December 31, 2015

Contact: Kim Cerise

Email: kim@chnfoundation.org

Craig H Neilsen Foundation has funded a one-year project with NCIL to subcontract with CILs to operate Path to Empowerment for Consumers with SCI projects around the country. NCIL received $125,000 for this one-year project.  $112, 500 will be passed through to 7 CILs operating Path to Empowerment projects.


Grant Period: January 1, 2015 – June 15, 2015

Contact: Son Park-McBride

Email: spark@cscn.org

The HSC Foundation funded a short-term grant for NCIL created the initiative entitled: Owning Our Stories. Through a workshop and community-wide event, storytelling was used as a tool to foster self-empowerment and self-advocacy for youth with disabilities in search of employment. The storytelling and employment empowerment workshop was held in May 2015 at the National Youth Transitions Center. During this workshop, youth with disabilities engaged in storytelling skill-building activities, and those skills were then connected to the different stages of the employment process. The second portion of the grant covered the community-wide storytelling and poetry open-mic event. With high attendance, this event centered on intergenerational community building and disability identity, culture, and pride, as disabled folks of all ages shared their stories and art pieces. HSC Foundation has contracted with NCIL for this 6 month project.  NCIL will receive $5,000 to carry out the project.


Grant Period: January 1, 2015 – December 31, 2015

Contact: Son Park-McBride

Email: spark@cscn.org

Real Talk: Conversations and resources about sexuality for young people with disabilities and sexual health providers.  Through funding from The HSC Foundation, NCIL has partnered with the Autistic Self Advocacy Network (ASAN) to run “Real Talk: Conversations and resources about sexuality for young people with disabilities and sexual health providers.” Real Talk will provide a safe space for young people with disabilities to discuss their experiences with disability and sexuality. In addition to affording young people with disabilities a forum to discuss sexuality, sexual agency, autonomy/consent, mind and body diversity, intersectional experiences, and pride, Real Talk will empower young people with disabilities to identify and develop resources to enable sexual health providers to become more accessible and inclusive. Real Talk specifically emphasizes the experiences of LGBTQIA youth with disabilities. As a result, sexual health providers will be able to provide their services to young people with disabilities in an accessible, inclusive way. We have already conducted a nationwide twitter conversation, ran very successful youth dialogues and have established a talented, innovative Advisory Panel to guide ASAN, NCIL, and the youth participants in creating and disseminating the tools for sexual health providers. NCIL partnered with ASAN to operate the Real Talk Project.  ASAN has subcontracted with NCIL and NCIL will receive $7,200 for our work on the project in 2015.


Grant Period: December 22, 2014 – December 31, 2015

Contact: Kevin Webb

Email: Kevin.Webb@meus.mea.com T

he proposed work will be done by Allie Cannington, NCIL’s Youth Transitions Fellow (YTF) through June of 2015.  In June of 2015, Allie’s one-year fellowship will end and the work will continue under NCIL’s new Youth Transitions Fellow.  Sponsored by the HSC Foundation, the Youth Transition Fellowship provides a young person with a disability with an opportunity to gain professional experience, in a position designed to improve access to employment for other youth with disabilities.   The Fellow facilitates collaboration among internship, fellowship, and apprenticeship programs geared towards people with disabilities in the Greater Washington, DC area. MEAF has contracted with NCIL to enhance the Greater Washington Internship Coalition.  NCIL will receive $9,940 in 2015 to carry out the project.

VII.  Advocacy and Public Policy Activities

NCIL Internship Program Since the creation of the NCIL Policy Internship Program a little more than five  years ago, NCIL has had over fifteen  interns from Florida, Wisconsin, Idaho, Washington, DC, Maryland, Missouri and California. The Internship Program has proven to be a successful addition to NCIL’s policy efforts, and has given individuals a unique opportunity to work for a national organization at the forefront of disability policy. The last few years have been particularly successful.  Intern staff has been involved in a variety of tasks including attending briefings, organizing events, congressional outreach, subcommittee support, along with research and analysis. The Internship Program continues to open opportunities for increased funding and collaboration with organizations like NYLN, HSC Foundation, and AAPD.  In fact we now have a fellowship with HSC to provide $48,000 a year to fund a Youth Fellowship. Youth Transitions Fellow Through funding from The HSC Foundation, NCIL hosted its first Youth Transitions Fellow (YTF) 2014-2015, Allie Cannington. In addition to co-creating and co-coordinating Real Talk and Owning Our Stories, Allie has facilitated the revitalization of the NCIL Youth Caucus. Allie has worked in partnership with Youth Caucus chairs, first with Angela West, and now with the most current chair, Maddy Ruvolo to ensure that youth with disabilities are engaged as members and leaders of NCIL. Therefore, the major goals of the Youth Caucus have focused on the 2015 Annual Conference. Here are the following accomplishments related to the NCIL 2015 Annual Conference:

  • Worked in partnership with the Conference Committee to solidify the 2015 theme: Generation ADA: Rise Up!
  • Created and launched the NCIL Youth Pledge, which instilled membership accountability to support and bring youth with disabilities to the conference.
  • Created the NCIL Youth Scholarship Fund
    • In previous years, the NCIL Conference has received up to $2500 for youth scholarships. This year, over $27,000 was raised for the NCIL Youth Scholarship Fund, establishing local, regional and national scholarships for travel, hotel, PCA services, and conference registrations. Thanks to the support of The HSC Foundation, Mitsubishi Electric America Foundation, Walmart, Arcus Foundation, Yoshiko Dart, and other individual donations, NCIL is supporting over 30 youth from across the country, from Hawaii to Arkansas.
    • The Youth Caucus and the Women’s Caucus are facilitating a salon conversation focused on how Walmart can build effective strategies for better serving and connecting with diverse and multicultural women with disabilities of all ages.
    • In addition to the myriad of youth-centered workshops available, there will be two youth events: the Youth Caucus Welcome and the Youth Caucus Happy Hour.
    • In total, with the support of the NCIL Youth Scholarship Fund and youth sponsorships from ILCs and SILCs, there will be over 75 youth with disabilities attending the conference.

In addition, NCIL is excited to welcome our next Youth Transitions Fellow 2015-2016, Keri Gray. Keri and Allie will be working together to ensure a smooth transition until Allie’s fellowship ends in August 2015.

Policy Work

NCIL continues to be on the hill regularly working on funding and attending relevant hearings. NCIL staff have attended hearings on H.R. 2646 (the Helping Families in Mental Health Crisis Act), appropriations for the Department of Health and Human Services, an oversight hearing on “the Vital Responsibility of Serving the Nation’s Aging and Disabled Communities”, a House Ways and Means Social Security Subcommittee hearing on “The Financial Risk of Returning to Work”, a House Ways and Means Committee hearing on “Promoting Opportunity for Disability Insurance Beneficiaries”

NCIL staff participated in a White House Business Council Update on the THUD budget, attended the Department of Labor’s Disability and Employment Symposium, attended the Social Security Administration’s National Disability Forum, and participated in the Department of Transportation’s “Measuring Connectivity: Creating Ladders of Opportunity”.

NCIL staff has been meeting with members of Congress and their staff about funding for Independent Living, including Chol Pak from Senate appropriations and Allison Deters from House appropriations.  NCIL also testified for additional funding at a House Appropriations Public Witnesses Hearing, and staff submitted written testimony and created testimony for the membership to submit.

NCIL staff have also been meeting with members of Congress and staff regarding concerns about SSDI, including Congressman Tom Reed, Senate Finance Committee staff, and staff from the House Ways and Means Committee.

We have been part of several strategic with other organizations meetings related to EEOC’s NPRM on employer wellness programs, the Murphy bill, inclusion of the disability community in efforts surrounding the Voting Rights Amendment Act, and NCIL participated in a phone briefing on EITC Expansion Proposals & Workers with Disabilities.

Staff have met with international delegates from around the world to discuss the independent living movement in the U.S., including the Prince of Jordan and delegations from China, Mongolia, the United Arab Emirates, Japan, South Korea, Liberia, and many more.

Significant efforts have also been put into parental rights for people with disabilities, with several multiple meetings being organized between NCIL, NCD, and Senator Crapo about possible legislation.  Staff have continued focusing on the DOL Home Care rule and attended the most recent oral arguments.

We attended a Policy Roundtable hosted by Secretary of Labor, Tom Perez, a National Disability Emergency Preparedness Policy Round Table at FEMA Headquarters, a CTIA Meeting on Net Neutrality, a White House Policy Briefing, a DMEPOS Meeting with ACL on Competitive Bidding, a Meeting at DOT on accessible pathways and bike lanes, a meeting with the Office on Federal Contract Compliance and Performance OFCCP on implementation of 503, NCIL Staff have attended hearings on “Closing the pay Gap for Workers with Disabilities”, a hearing on the Older Americans Act, a hearing on SSDI and a “Listening Session” on SSDI. We attended the White House Employment Summit, and of course, NCIL has been focused on implementation of the WIOA and making IL History! NCIL has also been very active in the congressional action on the ABLE Act.  We were one of the leaders in blowing the whistle on how last minute changes left anyone who acquired their disability at age 26 or after out of coverage of the act.

NCIL staff has also worked with a number of other national organizations to build relationships. Consortium for Citizens with Disabilities (CCD) – The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. Staff is very involved in the following CCD taskforces including health care, veterans, education, housing, technology, civil rights, employment/social security, and transportation.  This year I decided not to run for re-election to the CCD Board of Directors.  However, I was recently elected to the AAPD Board of directors.  I am also one of the co-chairs of the CCD Employment and Training Task Force.

National Disability Leadership Alliance – NDLA is a coalition of disability-led organizations and allies which NCIL is a member of and on the 15-member steering committee. The coalition was formed to build a strong and unified cross-disability movement so that individuals with disabilities would have the power to shape national policies, politics, media, and culture.  NDLA is guided by its values of self-determination, participation, choice, involvement, consumer control and people with disabilities having a voice.  The coalition has developed a disability policy agenda and is working on its own infrastructure.  NCIL staff has been very active in working with NDLA on many issues such as Healthcare, Voting and Employment, and recently very active on planning the 25 Anniversary of the ADA.

The Youth Transitions Fellow 2014-2015 has participated in groundbreaking meetings hosted by The White House, including the first-ever LGBTQ and Disability Forum in 2014 and a recent meeting on LGBTQ youth with disabilities. Additionally, NCIL has partnered with The White House, The National Council on Disability, and Disability Visibility Project in #OurADAStories social media campaign. In honor of the 25th Anniversary of the ADA, this national social media campaign celebrates and exposes the diverse stories of people with disabilities and how their lives have been impacted by the ADA.

Disability and Aging/ADRC: NCIL staff have actively participated in events related to both the aging and disabilities communities, including a launch event for the Bipartisan, Bicameral, Assisting Caregivers Today (ACT) Congressional Caucus, a meeting with the Executive Director of the White House Conference on Aging and several disability groups on the significance of the conference to the disability community, and the release of n4a’s Livable Communities report. NCIL staff have represented NCIL on bi-monthly Disability and Aging Collaborative calls, which include a coalition of national aging and disability organizations working to advance long-term services and supports for older adults and individuals with disabilities, as well as on the Center for Benefits Access Advisory Committee calls. NCIL staff, the ADRC task force, and other NCIL members have been active reviewers of ACL’s person-centered counseling trainings.  A group of CIL directors who reside in Part A states (states who received “Part A” funding from ACL for ADRCs) have met several times to discuss challenges and develop best practices related to ADRCs and No Wrong Door systems on a variety of subjects including person centered counseling training and sustainability. The NCIL ADRC Subcommittee was represented at the AIRS conference.  The subcommittee is preparing to present with ACL at the NCIL conference, and is coordinating a presentation that will be presented at the HCBS conference in August.  NCIL staff also presented at that AIRS conference during 3 sessions: the first presentation focused on the independent living movement and an overview of NCIL; the second focused on specific policy work NCIL is prioritizing; and the third focused on the results of the I&R survey that NCIL and NASUAD modified and disseminated earlier in the year.

VIII. Staff Lindsay Baran: Policy Analyst / Disability & Aging Specialist

  • Kelly Buckland: Executive Director
  • Allie Cannington: HSC Youth Transitions Fellow (2014-2015)
  • Eleanor Canter: Communications Coordinator
  • Tim Fuchs: Operations Director
  • Patricia Gill: Accountant
  • Keri Gray: HSC Youth Transitions Fellow (2015-2016)
  • Denise Law: Member Services Associate
  • Rie “Leah” Terashima: Administrative Assistant/Bookkeeper

NCIL’s Spring 2015 Policy Interns: Laney Allison, Jaggar DeMarco

NCIL’s Summer 2015 Policy Interns: Chloe Diamond, Mollie Greenberg